It has been beyond informative and makes a huge difference knowing there are people out there that understand. October 25th had my first Vestibular training they had me bring S. incase the therapy makes me too dizzy to be able to drive. I know that there is nothing I could have done to control the anxiety, I guess I'm just poorly wired that way or it is a defense mechanism. He also said he would slowly decrease our visits since I am not having the depression issues and I am in a stable mental condition. doi: 10.1097/MD.0000000000018309. Suffice to say, I was a total and complete mess. 2019 Dec;98(51):e18309. Questions: call the office on (03) 9347-8786. Wish me luck. They advised against it thinking that until TSH is low it increases likelyhood of cancer spread as it would increase my metabolism. Furlan AD, Yazdi F, Tsertsvadze A, Gross A, Van Tulder M, Santaguida L, Cherkin D, Gagnier J, Ammendolia C, Ansari MT, Ostermann T, Dryden T, Doucette S, Skidmore B, Daniel R, Tsouros S, Weeks L, Galipeau J. Evid Rep Technol Assess (Full Rep). I had some really entertaining PACU nurses who I conversed with for the better part of two hours until my room in the ICU was ready. At right about that time he came in with a transfer team and a shot of midazolam. I was also immediately able to have near full use of my voice, which told me that my larangeal nerves were ok - big relief. Removing lymph nodes in the neck (lymph node dissection). Now though my right knee has been making me limp a bit for the past few weeks will have a Dr Appointment while on convalescence leave. 3 weeks post TT Ask to be treated in the hospital for RAI to protect your family and the rest of the world. I still do have some hearing loss in my right ear but it is not something to worry about now, although they say in the future I may need a hearing aid. The Annual International Thyroid Cancer Survivors' Conference and Regional Workshops, Front neck numbness post Total Thyroidectomy (TT). They gave me two pain pills just as I was leaving the hospital and they took about 15 to 20 minutes to kick in. Muscle cramps. Regarding the pain levels and my voice. Mine is Synthroid and it really is noticeably better. Monday the 22nd at Madigan they gave me valium to go with the oxycoton didnt really help the pain I just didnt care about ANYTHING Tuesday night I started the antibiotics (1 day early) and by Friday the 27th the pain was back to where I only needed Tylenol. By 6:30 or so I was famished. An evaluation of the incidence, the typology and predictive factors of chronic pain was carried out at 3 and 6 months after thyroidectomy.A prospective observational study, having included each of the patients prior to their thyroidectomy, was carried out over 12 months. I don't exactly have problem swallowing, but when I do, it feels as if some one is lightly-moderately pressing my neck. We also scheduled appointments for me with the same nutritionist that S. has been using for her weight loss. Complications are much less common and can include neck bleeding, permanent hypoparathyroidism that requires ongoing calcium replacement, and damage to . Finally, I told the nurse I was overheating and she suggested taking off the leg squeezing devices. And mostly, please, pass it forward after you have your surgery. He currently thinks they are looking good at the level I am at and wants to wait till December before he adjusts them. He also said that the CT scans looks real good and would tell me more in December time frame. The effects of cervical kinesiotaping on neck pain, range of motion, and disability in patients following thyroidectomy: a randomized, double-blind, sham-controlled clinical trial. Karen & Dennis. 3) Met with Surgeon and he said, the mass on right was big enough that it needs to come out weather cancer or not . so according to the ultrasound write up surrounding lyphnodes were normal but no film existed. RAI was determined to be unnecessary, though I see my oncologist every 3 months (had one scare where some of my lymph nodes blew up necessitating a CAT scan last year), my endocrinologist every 6 months, and have my neck ultrasounded every 6 months. On April 20th I was informed that the results from Armed Forces institute of Pathology Washington DC and the summary was that the large mass of follicular cells was also cancer. I know the levels that I'm supposed to maintain at are different from those of normal people with a thyroid and no cancer history. 5) Does the TSH suppression level really effect the possibility of spread? It's hard to raise my head and I couldn't look up at the ceiling. They placed an IV line and took some blood samples. Unauthorized use of these marks is strictly prohibited. I'm considered low risk for recurrence. But, on leaving the hospital I was told to come to the doctor's office in a week for my replacement prescription. I also had a Nutrition Seminar on the 28th and found out that some of my energy, pain problems might be related with my Vitamin and Mineral levels. The cancer had spread to my vocal cords and had to be scratched off them and some other nerves. Just allow some water to run over the incision site and cleanse it. She was initially seen at an outside hospital where she was found to have a nodule in the left thyroid lobe and a metastatic node in the lateral neck, left level II. 2nd of August was my last visit with Dr E., he thinks am in a stable mental state and we both agree that more appointments right now probably wouldnt help any. Suffice to say, I was very disoriented for about the next 10 minutes. Soon after the diagnosis, I underwent total thyroidectomy with right lateral compartment and central compartment dissection on December 28, 2020. We called our local ent (who did the thyroidectomy in 2013) he was out of the office & since the ENT who did the most recent surgery of his lymph nodes is in Cleveland ( 3 hour drive for us ) so I took him over the the emergency room. I slept in this morning until about 8:30 a.m. and am happy to report that I'm feeling a lot like myself. The transfer team asked me to put the bair paws gown back on and I said no it was too hot. In fact, at first, I couldn't see it because it was the same color as my skin. The hospital said I could return to work after 2 days of isolation but my doc said 7 days ( I work with kids and have 2 kids). You can expect to have some pain after surgery. FOIA Is RAI 90MCI enough to take out 2 lymphnodes? The mass was softball size and the cancerous tumor was 4.8 cm follicular cancer with hurthle cell varient, since August 2012 I have had a partial thyroidectomy, TT 2 weeks later, RAI 157 mc October 17th, modified neck dissection Nov. 27th and now it's the waiting from blood test to body scans and getting the meds adjusted just right, a lot of side effects with Levothyroxin. I was told that I couldn't do radioactive iodine (rai) for six months due to my ct scan (cat scans use iodine for imaging and RAI would not be as effective). One less medical appointment set to have to worry about The nurse offered me some jello, and that wasn't quite as bad as the water, but it was no picnic either. Through the night I got up to use the bathroom. And yes, I know it could have been worse. Post-Operative Instructions for Parathyroid Surgery. Are you sure you want to block this member? Ylinen J, Takala EP, Nyknen M, Hkkinen A, Mlki E, Pohjolainen T, Karppi SL, Kautiainen H, Airaksinen O. JAMA. Could be in the supermarket or at KFC, I have no idea. I had to make a decision. The doctor says it might not ever be the same. That seems crazy low, is there any benefit at < 0.1 vs < 1.0? I was told to get naked and to put on a gown called a bair paws gown. Clin Exp Otorhinolaryngol. I got about half a sip down and the other half went all over my hospital gown. After hours emergency: A/Professor Miller's mobile - emergency only please. This is normal and will gradually get better as the wound heals. Parathyroidectomy cures almost all cases of primary hyperparathyroidism and returns blood calcium levels to a healthy range. I was told I had a goiter and it could be cancer so I needed to get to my primary dr asap. You may need a thyroidectomy if you have thyroid cancer or a growth on your . The first time I had RAI I had absolutely no symptoms. May 4, 2015 7:40 PM. If I can be as much of an emotional and psychological mess as I was and get through it I promise you will be just fine. There's just so many nerves and glands and other structures in your neck that you don't want to mess with, don't make the mistake of blindly putting your future in some random doctor's hands. Post thyroidectomy neck pain after endoscopic thyroidectomy. If you are taken care of only half as well as was I, then you will be in excellent hands at the hospital. At the end of the first week, the NPDS scores (mean [SD] = 8.82 [12.23] vs. 30.28 [12.09]), neck sensitivity scores (median [IR] = 0 [.75] vs. 2.00 [4.0]) and pain levels with neck movements (median [IR] = 0 [2.0] vs. 3.5 [5.75]) of the stretching exercise group were significantly lower than those of the control group. I have always preferred water at room temperature. You should wait at least 6 months after surgery to see how much would neck skin retract. Be careful. After getting zero sleep last Sunday night I arrived at the hospital at 6:00 a.m. sharp on November 23. I also covered the furniture with sheets and cleaned up with soap and water and a dry towel everyday. Typically thyroidectomies take about 3hours and you come out with a cute little 3in scar. At home I had only pain pills (as needed) and Motrin (every eight hours) no more IV pain medication. Show quoted text. I have felt 100% on my medicine (and I've been all over the TSH scale). I plan on going to my son's hockey practice on Tuesday, working this week, and getting ready to leave for Green Bay for a football game two weeks from today. 2. It sucks a bit, but plenty of people have totally fine experiences with no long term complications. Twenty-eight patients who had undergone thyroidectomy and 28 healthy . I still feel some prickling pain inside my neck and when i tried to lift my neck slightly from flat on my back the pain is still quite significant, I don't know if that means i'm still healing or whether i'll keep having the same issue. This option may be indicated if a thyroid nodule is small and localized to one side of the . Any suggestions will be greatly appreciated. The question is has anyone had these symptoms: burning pain, dizzy, swelling post op 3 weeks ? Then I read where the glands do not show up on CT. Furthermore, last night, I was awoken at 3 am by pain in my neck. Minor differences in their approach. I have never had the kind of fear that I experienced leading up to the weeks preceding my TT. I woke up and ate some more pretty soft food (didn't want to push it) and stayed up until about 10pm. #1. That was pretty much the best thing I've ever eaten! Also, they put on my legs those devices that squeeze your legs to prevent blood clots, they said they'd hook them up in the OR. On the 4th of May 2010 I was back at Madigan for a radiation count on my thyroid followed by my second uptake dose of radiation (RI-123 UPTAKE) 2.8 mCi I-123 t1/2= 13.2 hours 4) Went through with Surgery on July 29th, was a mess I guess as right lobe fused to esophogus and wrapped around windpipe areas. No idea why this report was 2cm and ultrasound showed 3cm. Surgery lasted 6.5 hours, NO LYMPH NODES REMOVED, but complete TT. On Friday the 8th of October I will have the stitches removed from my eyebrow everything looking good. From the time I knew I would be "going under the knife" I started experiencing panic attacks, thoughts of extreme terror, and general malaise. I resumed my mental health appointments with Dr E. on the 24th of May. He also set me up with some Blood tests and put in the recommendation for a full Sleep Apnea study in Silverdale. It's a scary place I don't really want to go back to. I go back to my Drs office for results next week and am doing my best trying to stay away from my sweet family and dog. 3 Sep had an appointment with my primary care doctor for setting up appointment for my right knee and more ear drops for the infection. 1) When can I start running and exercising? Nov 2009 through Oct 2010. One more (indelicate) thing, take the stool softener they give you. So, seriously, take the stool softener. He said he would test the tissue during surgery for cancer. I have discovered that this is not a good cancer to have and it has not been easy. Neck stretching exercises done immediately after a total thyroidectomy reduce short-term neck pain and disability symptoms. They said let the steri-strip fall off on its own and it fell off today. I have papillary thyroid cancer with a follicular variant. The next thing I remember was sliding back to the cart to be wheeled to the recovery room. get a second opinion if you are not satisfied with the care you are getting. Simply put, for me, the only option was the traditional open neck procedure; but, I felt better knowing I'd exhausted that possibility. While I was taking 150 mcg/day, I was feeling quite good but she said my tsh didn't need to be repressed that much, that I was borderline hyperthyroid, and cut me back to 125, and then 115 (at which point I felt rather garbagey, started struggling with depression, muscle pain and some fatigue). So, here is a more detailed experience of what just the thyroidectomy was like. I know its a bit silly but I am kind of nervous of attending the cancer survivor group. Do to how well the first surgery I was not expecting any problems although I am always nervous about surgery. As of august I am no longer seeing mental health, they think Im normal, and I am feeling a lot better. When I tilt my face upward and try to swallow, this discomfort is magnified. Initial risk classification was determined as T3N1bM0, American Joint Committee on Cancer (AJCC) 8th edition stage 1, and intermediate American Thyroid Association risk. Health care providers perform thyroidectomy to treat thyroid disorders. Everything was great up until the Packer game that didn't go so well for me (much better for the Bears fans around here I could hear cheering). An official website of the United States government. and his team (same group who did the right one). Tomorrow I have my 1 week post op appointments with both the surgeon and the endocronologist. So not going to lie, recovery from that absolutely sucked for about 10 days - lots of dizziness, tiredness, general throat and neck pain and uncomfortableness - and I didn't get my drains out for 2 weeks post surgery, which was another great addition to such an extensive surgery. As my health slowly improves I am starting out my workout regimen again and slowly building my strength back. The result of the biopsy concluded Papillary Carcinoma. Not sure what my TSH read at those doses, but I see my oncologist in a few weeks and am requesting a copy of my medical records should be able to figure out what my levels were with each by comparing them to the dates of prescriptions. I was under a great deal of stress and thought that was why I gained so much weight so quickly. So many people just blindly trust anyone with an 'MD' in their title, but call people you know who have gone through it, meet with multiple different doctors, make sure your surgeon does hundreds of these a year. At 6pm when I still wasn't in surgery I had them phone him and he was just arriving in the lobby. So frustrated and all alone - 2nd guessing what Dr's have done and why. Follicular carcinoma minimally invasive (7.1 cm) I am hoping against hope that I can build my endurance with regular exercise. Four weeks after her surgery, the patient presented to our clinic. It was pretty awful. I really haven't had pain since mid-lsat week. July 15th Friday Madigan hearing consult from first ear surgery and pre surgery plans for 2nd ear surgery ENT clinic follow-up from thyroid surgery and the start of the planning for my 2nd ear surgery. Don't stay in a hotel if you can avoid it after RAI (it really is dangerous to others) and if you do, don't post it anywhere or you will be crucified (however if you search, there are really good posts about how to do it as safely as possible). Anyway this is what is going on now. My thyroid was removed due to papillary cancer in April 2008. I also had a total thyroidectomy in June (10 months ago) also due to Multi nodule goitre, I had many many nodes on my thyroid gland almost so many that doctors were surprised, and over a 10 year check up process initially from 4 nodes increasing to countless amounts where it was putting pressure on my windpipe, so I opt for a thyroidectomy. Hi! 2) Did anyone else get post RAI Ultrasounds and show remnant tissue in thyroid bed? 2022 Feb;15(1):24-48. doi: 10.21053/ceo.2021.00633. They gave me a pill and I drove to a cabin in the mts. Results. Also put me on the We fit balance game and I completed it on the 3rd try. Whiplash during automobile accidents is a common injury that causes neck pain. I sound much better now but I do speech therapy constantly to improve strength (I'm a speech path so I knew what I needed to do), dry needling and physical therapy on my neck. Ultrasound revealed another Lymphnode near Thryoid bed that is 1.5cm (Where did that come from, could it be enlarged due to surgery? I am from USA but in the Philippines, and I went full Vegan after all of this. I have been drinking a lot more water because of the dry mouth condition and always wake up with an extremely dry mouth. Patients who undergo thyroid surgery frequently suffer from unpleasant symptoms such as a stretching, choking, or pressing feeling or discomfort in the neck for a long time. With that in mind, here are 5 things that I think you should know if you've had your thyroid removed based on THIS experience. Keep a log of questions. Another good point I did not have any hiccups from this surgery. I'm sleeping over 14 hours+ a day, I'm shaky, chills off and on, but no fever. I am in the normal range and will worry about that in December time frame. What is the standard for removing them? ThyCa: Thyroid Cancer Survivors' Association, Inc. I also received some stitches on nerves inside. Getting up and moving was huge - really helped shake off the remaining cobwebs from the anesthesia. She gave me a few homework assignments Head and Eye (vor), some walking exercises and habituation (brandt-daroff) exercises Epub 2022 May 30. Accessibility The only good thing is that they have taken me off the Low Iodine Diet and are starting to give my Synthroid. Although, I highly recommend going somewhere where you can be alone (not a hotel). These symptoms may persist for long . The other doctor did about 45 thyroidectomies per year. Because I had such an intense spread, my surgical experience was a bit different than others. He admitted that he would have liked to have seen me when I was still had my thyroid issue but we will work from where I am. Also I had a follow up with my mental health provider. 30 Nov 2011 Official Retirement from Navy. However in addition to no LID, no one ever discussed things like AG, AGant, what TSH is, etc . The only problem I had with the surgery was hiccups that lasted about 10 days, I was told this was due to the tube they put down your throat during anesthesia. She also gave me hints to help minimize the surgical scar. Both surgeons recommended almost the exact same treatment plan. The biopsy of the left thyroid nodule was rated as Bethesda category IV (follicular neoplasm), and the lymph node was consistent with metastatic papillary thyroid cancer. The aim of this study was to analyse the long-term musculoskeletal disorders in TC patients who had undergone thyroidectomy. DON'T get a tonsillectomy with your TT. undefined will no longer be visible to you including posts, replies, and photos. On the 18th of June I went back to Dr Ch., Endocrinology at Madigan for follow-up on my CT scans and to check the balance on my thyroid meds. I feel very lucky. Now that I have my Vestibular training times setup I hopefully will be able to schedule Physical therapy for my knees without conflicts. Jul 30, 2016 10:05 AM. Follow-up of the patients with the scales applied in the experimental group were also performed to the control group at the same intervals. However, such measures have not been evaluated by randomized controlled trial . Now, the scar. But, the pain I had last night was sharp. So, I feel like I'm ending on a negative note but this is my reality right now. I can turn my head side to side and rotate them with some discomfort, but I feel the discomfort fading gradually. When, my partner got there, I asked him to get me a towel (it's amazing how much more I'll ask for through someone else rather than on my own I don't know if I'm the only one that way) and to wipe my back off. I then had to kill another 5 or 6 uncomfortable hours though waiting for the ICU doctor to finally finish my paperwork so I could go home. They ran blood tests, no infection or blood clots . They have removed most of the mole on my eyebrow and sent it to be checked for cancer. ; Hemithyroidectomy or thyroid lobectomy: This involves the removal of one of the two lobes of the thyroid gland. The surgery went well but do to low calcium and magnesium levels (parathyroid(s) where not fully functioning) I was kept in the hospital for 2 days to ensure my parathyroids were maintaining proper levels. I received a lot of encouraging feedback from many people on this site and would like to thank them all again. Now, it was time to take my dinner pills. The initial screening showed no cancer on that side once removed. Just to briefly give my details again. On the 3rd of May 2010 I went up to Madigan for a scan of my body for radiation followed by my first uptake dose of radiation (RI-131 UPTAKE) 8.1 uCi of I-131 t1/2= 8 days. It was another small blow knowing that I had 2 types of thyroid cancer not one. I did not receive a call, so, I showed up at the appointed time and was taken back to pre-op at almost exactly 2pm. Went to Bremerton naval emergency and they put me on oxycoton and told me to go to Madigan on Monday I underwent a thyroidectomy and extensive bilateral neck dissection two years ago. It kind of made me mad and I felt a bit taken advantage of that during a time of such crisis they were asking for payment up front. Once they do this will it be possible to do strenuous exercise (Boxing / Sprinting etc ) or could that affect my heart? I saw the bandage over the scar for the first time and was really surprised at how small it was. 2010. I think my voice was the last thing to come back, but after 3 weeks that was fine as well. It makes hormones that control every part of your metabolism, from your heart rate to how quickly you burn calories. The bottom line is that as soon I said I'd had a positive FNA and that the nodule was greater than 1cm I was told no. They said the scar from my thyroid surgery is mostly healed and looking good and that we can start planning the 2nd ear surgery. I remember getting onto the operating table and the anesthesiologist telling me that she was starting anesthesia. I took all my own sheets, towels and wore gloves the first two days. In the morning they brought me what I asked for for breakfast (Cherios, yogurt, and apple juice). My wife took my kids up to her parents in Wisconsin and my mom stayed with me in Chicago. I didn't sleep even a minute. The https:// ensures that you are connecting to the My body scan was interesting. Two things which haven't gone away, and bugging me greatly are: I had a lot of other questions, but those two were, at the very least, on the top of my list. A few days later she called again and said that my Vitamin D is also very low and I would have to have another appointment with my PCM to get high dose Vitamin D pills. Then a bunch of insurance crap happened (my entire surgery may not be covered because the ENT was not on my list of docs I could see - this is bs but a completely different story) and I had to start driving an hour away to see an endocrinologist. Nothing like feeling normal. I went to both appointments with a list of written questions. Once there I registered and was sent to the 11th floor where I was placed in a nice looking hospital room. I was diagnosed with papillary thyroid cancer over the summer and received a total thyroidectomy and bilateral neck dissection two months ago. After the shot of midazolam, I was willing to put the gown back on along with the anti-clotting boots. I did the thyrogen shots instead of going off of my synthroid, so if you have that option, would 100% do it. The Impact of Post-Thyroidectomy Neck Stretching Exercises on Neck Discomfort, Pressure Symptoms, Voice and Quality of Life: A Randomized Controlled Trial. Given that I had what my doctor (the top thyroid surgeon in the region who does hundreds of surgeries a year) said was the biggest surgery he had done all year, my recovery was much worse than what most peoples should be. Held at hospital 3 days post RAI, then stuck here since I have a 2.5 year old. She was confident that these findings appeared after her thyroid surgery. 4) They plan to suppress my TSH which will make me Hyperthyroid. My biggest node was 3.5cm, with a couple other in the 2-3cm range, plus ~30 cancerous lymph nodes. Hi! You will experience some discomfort at the incision site as well as a raw or sore throat from the breathing tube that . I don't know where it is. Was able to do up and down 3 times each leg. This community is sponsored by ThyCa: Thyroid Cancer Survivors' Association, an Inspire trusted partner. 2 Sep end of my convalescence leave, and back to work. Federal government websites often end in .gov or .mil. As days pass, I feel that this might not be a good decision. Total or near-total thyroidectomy: This involves the removal of all or most of the thyroid gland.This surgery is often indicated for large thyroid cancers, large goiters, and Graves' disease. On March 8th I had a full eye check and they gave me a new prescription for glasses along with noting that I should have more frequent eye checks (6 months a year) do to the fact that thyroid issues can cause vision changes. Numbness or tingling of fingers, toes, or around the mouth. The last 2 days he has been dizzy, lightheaded. Another thing I get to consider is that when I get dizzy my knees tense up and start hurting a lot more so now that I am doing the Vestibular training I will be having more knee/leg pains. I had a total thyroidectomy last week. Again - very minor things that don't inhibit me from doing what needs to get done. Thyroid cancer support group and discussion community. It's typically worse the day after surgery and quickly begins to get better. Trust me they are, but I worked it out. 2007 Mar;39(2):126-32. doi: 10.2340/16501977-0015. Thyroidectomy is the surgical removal of all or part of your thyroid gland. On October 4th I had my first appointment with Su., the nutritionist, and she told me that looking at what lab results were in the system that my calcium, magnesium and potassium are all low.
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